Saturday, September 26, 2009

Calmer heads today

When in doubt, take it to the source. Act like an adult, discuss and give the 'accused' a chance to speak. Yep I actually did that!! (Hahahaha, never thought you'd see the day huh ;) )

After much yelling, screaming and outright temper tantrums I went in to the school on Fri am to have a 'chat' with the Principal. At first, it seemed like she was giving me the brush off, but I pushed my case and managed to squeeze an apt. for later in afternoon, rather than wait until Tues (Mon is a PD day). She maintains that she wasn't going to take Miss Sandy away permanently, but to 'borrow' her for the other classrooms when she is not needed with Kenny. Now this is different info from what I originally heard, but I think that she has received so much flack that she has had to back down.

Now both Hubby and I agree that she wasn't about to inform any of us parents. Which I guess legally she doesn't have too. BUT (and yes I have a big one) I guess she completely underestimated the fight we (as parents) were/are willing to wage to keep Sandy in the classroom as much as possible. Sandy herself is trying to work out how to keep as many people happy as she can, by dividing her time to help everyone involved, but without comprising the children she is already attached too.

I'm still ticked that she was trying to change Kenny's care without informing us. Being that even small differences to his routine can cause major outbursts, but I'm hoping that by approaching her like I did, that she will tell me next time and we can be prepared for any possible fall-out. I also really don't like the idea that he will be left in a classroom full of kids without another adult to help if he does have a meltdown. They can be so quick and so violent that I am truly scared that another child will be hurt before someone can intervene. But I did state this, and she (principal) seems to think that it won't happen. We will see I guess.

Now on to other topics. We are back to visiting a bunch of doctors for Kenny again. Something is wrong and we have no idea what. About two weeks ago, at school, he started to complain that his tummy hurt along with his pee and he wanted to go home. That in itself is concerning, 1) he doesn't complain anything hurts and 2) he has never wanted to go home from school. So a trip to the walk in clinic was in order since we couldn't get into see his Dr. that afternoon. While there they made him pee in a cup (which he thought was the absolute best thing!) and gave him a complete once over. Except for white blood cells in his urine, nothing else seemed off.

Dr at the clinic recommended that we make a follow-up apt, did and sure enough still no sign of infection, but white blood cells in his urine. So off to a Ped. Went there on Monday. Now he is sending a referral to get Kenny an ultrasound on his kidneys and lower abdomen. Poor kid, who knows what is going on right now. He certainly isn't going to tell us.

Other than that, things are going ok. Busy with a bunch of stuff. Soon hopefully we can start working on the house again. We are going to strap the living room and dining room ceiling and then put up drywall. That should solve the crack problem (we hope) without tearing down all the plaster and making one heck of a huge mess.

I had carpel tunnel surgery on Thurs and it still hurts but is getting better. The nerve is acting funny and jumping around but apparently that is it healing itself, or at least trying to. Oh and I am going to see my Doc on Mon for what might be a heel spur. For around 3 weeks now to walk has been hell. I can't seem to catch a break (shhhh, wrong word to use!!)

Gotta run. Maddy has decided to pitch a fit and we are trying to get out the door for Wellington Rural Romp. Gonna go visit a bunch of cows, pigs, chickens.......... Such fun huh :)

Thursday, September 24, 2009

I'm PISSED!

That's right, PISSED! Completely, totally, yell it from the rooftops PISSED!

The principal at Dudes school is trying to take away his E.A.(Educational Assistant) to work in another room. The ONE reason he goes to school willingly, wants to go, begs to go, to play with Miss Sandy. And the (new)principal wants to take her away. This cannot happen. We are already watching him regress again with physical issues that we can not figure out. And now this?!?!?!?!? Why, WHY would you take someone away from an autistic kid, when routine and consistency are what holds these children together! Why, WHY would you take his E.A. away when for the first time he was writting letters (alphabet) by himself!!! Not tracing, no guiding his hand but BY HIMSELF!!!!

I just dont' get it. I really don't understand. Given that this principal was a special ed teacher in the same school when Tana was there. She of all people should know that this is a VERY BAD, STUPID, FUCKED UP IDEA!!! And now I get to fight with another school system. I lost badly with the Etobicoke Board when it came to Tana. I never thought I'd need to do it again here! I tried to teach her to take what was dealt, make the best of it and prove them wrong. But it wasn't until we moved here that we saw a change in her attitude towards teachers and schools in general. And I'm not fighting to choose specific teachers, just to keep the ones he has. He does need to learn change and there are times that you may not like someone, but you still need to deal with them (without biting, pinching, hitting, spitting etc) and learn to find a way to co-exist in peace. But why after a yr and a bit would you even think of taking away the ONE, get that, ONE person he loves. He already knows that he will not have her next yr. We've already started to prepare him for that. But to take her away with no damn warning?!?!!?!?! Why in the living fucking hell would any rational, supposedly educated person do that???????

And in case you are wondering, I have a call in for his Occupational Therapist. She is a great advicate for 'her' kids, especially when it comes to the school system. Oh and the topper of the day, not that anyone asked but your going to hear it anyway, I have CT (carpol tunnel) surgery today. Just bloody perfect, isn't it.

Sunday, September 6, 2009

5 yrs.

Yep, 5 yrs. 5 long, eventful, fun, sad, enlightened, scared yrs. 5 yrs since my Kenny-Dude was born. Unbelievable.

Happy 5th Birthday Duders!!!! We all love you so much!

About Me

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Ontario, Canada
Married Mom of 3. Just trying to survive with the many challenges.